Indeed, doctors often give worse case scenarios I think 1)perhaps because from a medical point of view, they don't want to see the child suffer physically and 2)Unfortuantly, often times I think dcotors see an unborn baby with a poor prenatal diagnosis as a medical condition to "fix" rather than seeing a second patient.
3)they don't want to risk wrongful birth litigations.

But from the parents point of view, no doubt a poor prenatal diagnosis can be a devistating diagnosis. And I often think the head (logic) becomes seperated and weighed against the heart (feelings). In their mind they may be picturing medical bills, leave from work, hospice care, child care, etc while their heart certainly fears their child bearing pain or passing at birth but at the same time, feels attachment to the child in the womb. So in conclusion, I definatly think prenatal counseling needs to be more in depth and rounded and better provide alternatives and referrals for means of support (i.e. infant hospice, parent support programs, medical treatment options, etc).
Rachael | Homepage | 08.03.07 - 7:42 pm | #

I was googling today and saw that Arianna was on this blog. It made me so happy to see that she can be an example to others that our Trisomy kids can survie and thrive. She is now 16 months old and doing really well. She had to have a G-tube placed because she was aspirating her feeds into her lungs, it was hard to go through with the surgery but it was the best decision we ever made. She is healthy and happy now. She can roll over and is trying to sit up, huge progress. You can see updated pics on her blog @ www.ariannajoliesnell.blogspot.com

Thanks again,
Julianna
Julianna Snell | 11.02.07 - 1:10 pm | #

Correction, her blog is http://ariannajoliesnell.blogspot.com/
Julianna Snell | 11.02.07 - 1:19 pm | #